“The Cameron Boyce Foundation is honored to continue its partnership with CURE Epilepsy and explore ways to work together to improve epilepsy awareness, treatment accuracy, and ultimately a cure for epilepsy!” said Libby Boyce. “In honor of our son Cameron, who lost his life to SUDEP, The Cameron Boyce Foundation and our donors are pleased to fund Dr. by David Auerbach search with CURE Epilepsy Cameron Boyce SUDEP Fellowship. We thank CURE Epilepsy for allowing us to participate in this work and for including us in their community. We are convinced that by working together, we can make a significant difference in the lives of people with epilepsy.”
“As we enter the second year of this partnership, CURE Epilepsy is very grateful to the Cameron Boyce Foundation for its continued commitment to funding critically needed epilepsy research,” said Beth Dean, CEO, CURE Epilepsy. “No one should have to go through what the Boyces have. Through this relationship, Libby and Victor further demonstrate their unwavering dedication to helping better understand SUDEP so we can prevent it, which will make a difference in people’s lives. living with epilepsy now and for years to come. Their investment is essential to help provide a brighter future for the 65 million people living with epilepsy worldwide. Through research, there is hope.
Epilepsy research is a vastly underfunded area. Epilepsy is the fourth most common neurological disorder behind migraine, stroke, and Alzheimer’s disease, but receives far less federal funding. CURE Epilepsy has helped fill this void, particularly in the area of SUDEP research. Thanks to funding Jit CURE Epilepsy Cameron Boyce SUDEP Research AwardThe Cameron Boyce Foundation recognizes the promise of this work and strengthens its resolve to honor Cameron’s legacy by supporting epilepsy research, awareness and education.
About SUDEP: Sudden unexpected death in epilepsy (SUD) occurs when an apparently healthy person with epilepsy dies for no known obvious reason. SUDEP is the leading cause of epilepsy-related death. It is estimated that approximately 1 in 1,000 people with epilepsy (3,000 people in the United States) die each year from SUDEP, however, the number is likely higher due to poor surveillance and under-reporting. SUDEP can affect anyone with epilepsy, although some people are at higher risk. Although steps can be taken to reduce this risk, further research into SUDEP is essential to understand the underlying causes in order to prevent it from occurring.
About CURE Epilepsy: CURE Epilepsy’s mission is to find a cure for epilepsy by promoting and funding patient-oriented research. Since its inception over 20 years ago, CURE Epilepsy has raised over $78 million to fund innovative studies to advance its goal of freedom from seizures and side effects. To date, CURE Epilepsy has funded over 270 cutting-edge research projects in 17 countries around the world, including over $5.3 million devoted to 38 SUDEP research studies. As a nonprofit leader in epilepsy research, CURE Epilepsy is unwavering in its commitment to fund scientific studies and accelerate research to achieve our goal – a world without epilepsy.
Through research, there is hope. To learn more, visit CUREepilepsy.org or contact us at [email protected]. You can also follow us on Facebook at @CUREforEpilepsy, and Instagram, Twitter and LinkedIn at @CUREepilepsy.
About the Cameron Boyce Foundation: The Cameron Boyce Foundation (founded in 2019) honors the legacy of Cameron Boyce aiming to cure epilepsy by funding research, education and awareness campaigns while supporting causes important to Cameron. Cameron was an extraordinary person, whose kindness and philanthropy will live on through those who knew and loved him. The foundation created in his honor is just as versatile as he is and strives to do everything possible to use the best possible resources to help others and make the world a better place.
SOURCE CURE Epilepsy