Venture Into Cures, a virtual benefit show, brought together world-renowned actors and musicians to raise awareness and funds for the EB Research Partnership
NEW YORK, December 1, 2022 /PRNewswire/ – About November 20, EB Research Partnership (EBRP) presented the third edition Venture into cures, an inspiring virtual event featuring moving stories about individuals and families living with Epidermolysis Bullosa (EB). Co-founders Eddie and Jill Vedderas well as their daughters Olivia and Harper Vedderwere joined by a list of friends and celebrity guests to garner more than $1.3 million for EBRP, bringing the total raised over 3 years via Venture Into Cures to more than $6 millionbringing the organization closer to finding a cure for EB and paving the way for other rare diseases.
More than 75,000 people from over 70 countries tuned in to watch the special which included appearances and performances by Jonathan Brown, Dana CarveyBillie Eilish, Will FerrellFINNEAS, Jack Harlow, Tom Holland, Joe JonasKermit the Frog, John Legend, Macklemore, Lamorne Morris, Joy Oladokunred peppers, Chris Pratt, Keanu Reeves, Olivia RodrigueShattered social scene, Molly Shannon, Hannah Simone, David Pique, Lauren Spencer SmithVedder family, Emma Watson, Venus Williamsand more.
The one-hour virtual show was produced by EBRP and Door Knocker Media, with artist booking by one twenty-eight. Watch the Venture Into Cures replay stream on https://www.youtube.com/watch?v=6DPxsVlofwA
“With our third annual Venture Into Cures event wrapped up, we can’t begin to express our gratitude to those involved in this amazing show,” said Jill Veder, co-founder of EBRP. “From the exceptional talents who volunteered their time and voice to the generous donors who continue to come forward for the EB community, we are immensely grateful as we move closer to finding a cure for EB.”
“With the continued support of Venture Into Cures’ public, donors, and patient and physician communities, we will continue to fund the world’s most innovative and impactful research. Over the past decade, EBRP has made strides in research and clinical trials. With the resilience of families and the commitment of scientists, together our ambitious goal is to cure EB within this decade,” added Eddie Veddermusician and co-founder of EBRP.
Produced by EBRP and Door Knocker Media, with artist booking by one twenty-eight, highlights from the show include:
Actor Emma Watson featuring the story of a fearless 6 year old Elodie Kubikthe inspiration behind the annual fundraiser, Plunge for Elodie, in conversation with Kermit the frog.
Singer-songwriter John Legend, performing an exclusive presentation of his song, “Never Break”, in honor of the brave young people and families living with EB.
An inspiring and educational conversation between Dr. Jean Y. Tangand dr. Antoine Orotwo brilliant scientists are leading the charge to discover innovative EB therapiesintroduced by athlete and entrepreneur, Venus Williams.
Actor Chris Pratt presents the seven-year-old EB Warrior Solomon Bonnerand shares its story through a mutual love of dinosaurs.
Singer and songwriter Olivia Rodrigue lends its voice to EBRP, through an inspiring video montage.
Actor Keanu Reeves brought to light the story of Deana Molinaroa young artist who uses the power of art to heal and inspire others with EB.
EB is a life-threatening genetic disease that affects approximately 500,000 people worldwide. Called “butterfly children” because their skin is as fragile as a butterfly’s wings, children with EB face severe pain, external and internal open wounds, and a grueling daily dressing process. There is currently no treatment or cure for EB; However, EBRP’s innovative venture philanthropy model is helping to accelerate not only a cure for EB, but also therapies that could affect thousands of other rare diseases.
Co-founded by a dedicated group of parents, with Jill and Eddie Vedder, as the world’s largest organization supporting EB research, EBRP has funded over 120 projects through its innovative model, directly impacting the clinical landscape. Thanks to EBRP’s work, clinical trials for EB have increased nearly 20-fold, from 2 to nearly 40, including four Phase III clinical trials, the final phase before the FDA considered approval of a new treatment.
To learn more about EBRP’s life-changing work, visit www.ebresearch.org.
About the EB Research Partnership
Founded in 2010 by a dedicated group of parents and Jill and Eddie VedderEB Research Partnership (EBRP) is the world’s largest non-profit organization dedicated to funding research aimed at treating and ultimately curing epidermolysis bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from the birth.
Work around the clock with offices in the United States and Australia, EBRP uses an innovative venture philanthropy business model. When they award a research project grant, they retain the added benefit of generating a recurring revenue stream if the therapy or product is commercially successful, and then use the return on investment to fund additional research into the EB until a cure is found.
To learn more, visit www.ebresearch.org.
About Door Knocker Media
Door Knocker Media, is a leader Toronto, which creates online, mobile, and live presentation content for brands, agencies, and nonprofits. With its finger on the pulse of the latest production and post-production trends and technologies, Door Knocker achieves unparalleled storytelling and results-driven content. doorknockermedia.com
Around one twenty-eight
One Twenty Eight is an impact agency that disrupts the way change happens. By partnering differently, the integrated strategic agency offers a fusion of talent booking, cause marketing and CSR support, with the goal of maximizing social and community impact. Rooted in building authentic relationships, one twenty-eight has partnered with brands and organizations with talent such as Selena Gomez, Natalie Portman, Idris Elba, Jonas Brothers, Lilly SinghBillie Eilish, Shawn Mendes, Will Ferrell, and more. Learn more about how to make an impact, at onetwentyeight.org.
SOURCE EB Research Partnership
